Sorry it has been almost two weeks since I updated. I really didn't feel like I had anything significant to say, so I didn't want to waste your time. But, I thank you for checking up on me and scolding me for not writing something sooner! (You are very caring.)
The progress seems to wax and wane, but overall I am improving. I have been able to drive the last couple of days and that is pure bliss to have some independence again! I am currently trying to reduce my steroids, but to date, I have not been able too. In fact, every attempt has been met with a larger dose the following day to get my throat and airway cooperating again. It is a bit frustrating. My body cannot seem to handle the fluid retention any longer from the steroids either. I can no longer wear my rings and I have to pound my shoes on my feet. Oh, yeah....and my cheeks...on my face.......they are just a wee bit LARGEEEEEEEE. No more hiding the prednisone from the public eye. That does bum me out a bit. I enjoyed a little bit of privacy on that front.
Some of you were asking exactly what I wanted you to pray for, so I would be more than willing to give you a list!!!!
I would like healing, of course! Also, I want to come off the steroids or at least get to reduce them. A good freeze here would help a lot to lower the aspergillus count. Also, we are still waiting on the insurance and approval to send me to the Allergic Bronchopulmanary Aspergellosis guru doctor at Northwestern University. Finally, the legal stuff is out of our hands and we are waiting. So, that's my list.
1. Reduce Meds.
2. Hard Freeze
3. Insurance Approval
4. Legal Progess
You know, I cannot begin to express how much I feel and cherish your prayers. Thank you so much.
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