Sorry about the delay in getting an e-mail out to you. It has taken me a while to get the fog cleared from my head. Everything is done now. It was more extensive than what we realized going into the biopsy appt. yesterday, making it a two part procedure. They are checking for mastocytosis, but also some other things as well. None of them are good, so there is no point trying to explain each of the possibilities. Mike and I firmly believe that it is straight forward ABPA, but we do know that this testing was necessary to rule out the other possibilities. The Hematologist said that he will have some preliminary results back by Friday, but it will take up to two weeks for everything to come back. I'll be looking forward to receiving a "good report" in two weeks...keep praying!
So here is the plan to get me out of aspergillus world: Dawn, (my sister for those of you who don't know her) is flying out here. She is coming to help me pack and then fly me back to Indiana. Here we are, all grown up, and she has to babysit me again! Mike is bringing the boys out separately. He doesn't want any distractions for Dawn or I. He is road tripping it across country, leaving here on the 25th. Dawn and I will fly out of here soon, I just have to get our flights lined up. All of us are walking on pins and needles trying to keep my airway open, so Dawn and I will leave as soon as I can get everything lined up for childcare, ect. Once the environmental levels of aspergillus fall and we have consistent freezing weather, the boys and I will return to WA.
Rex and Lorraine's home checked out with the lowest level of detectible aspergillus fumagutus at 18 per cubic meter. The outside was 36 per cubic meter. Here in WA, after remediation, our home was 5000 per cubic meter and currently it is 70,000 per cubic meter outside. I know these are geeky details, but it also gives a good perspective of the difference in the environment. I'm looking forward to breathing.
I'll be staying at Dawn's until Mike and the boys drive through and pick me up on their way to Mitchell. I'd love to see all of you, but I am quite the whimp on all these medications. Please come and visit me at Dawn's. I'm very concerned about going into Rolland Manor to see Mom due to the high likelyhood of aspergillus in the ventilation system. So, if you are coming to visit me would you bring Mom with you? I know that is quite a favor I am asking for!!
Love you and thanks for the prayers,
Anne
Tuesday
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